Elisabetta Turin's Fundraiser
Help Cure LBSL for Mariasole and Lorenzo and other kids around the world!
Please help us find a cure, it doesn't take much to make a difference. If you can, donate today!
Two years ago, at the age of one, my daughter Mariasole was diagnosed with LBSL, a rare neurodegenerative disease that affects the brain and spinal cord and slowly deprives children of the ability to walk. Mariasole is now 3 years old and thanks to vitamins and rehabilitation she has made great progress.
Two months ago my son Lorenzo (14 years old) was also diagnosed with the same disease. Please help research to find a cure. It doesn't take much to make a difference.
We Are Fundraising to Help People Born with LBSL!
September 20 is LBSL Awareness Day. Are you aware...
- Less than 300 people in the world have LBSL?
- Most doctors have never even heard of LBSL?
- LBSL kids and adults sometimes need special care and accomodations at school and work to keep them safe?
- LBSL knows no geographical boundaries?
Thanks to Cure LBSL no patient has to navigate this alone. And with your help we can ensure there is always someone at the other end of an email or phone to provide translated resources, connect people with doctors and researchers, and let them know they are never, ever alone.
We are asking a few of our key partners to rally their friends, family, and networks to support our work. By becoming a fundraiser for Cure LBSL, you will help more families and you'll help your friends feel good about doing good.
Starting a fundraiser is easy to do, and it's fun. We'll even give you all the tools you'll need to make a difference. With your help we can ensure Empowered patients who have hope for future treatments and the knowledge and support to live there best life today.