LBSL Awareness Day is September 20th

It is a privilege and an honor to be the Director of Patient Engagement for Cure LBSL (formerly A Cure For Ellie). Truly the most professionally and personally fulfilling jobs I have ever had. Every day, I have the joy of working with people who live with LBSL and their families to find and create resources for them to thrive.

LBSL is an ultra-rare, neurodegenerative mitochondrial disorder that typically shows first symptoms in early childhood.

The "small but mighty" community is coming together to celebrate LBSL Awareness Day on September 20th.

We would be so grateful for any financial support you can offer! Thank you!