LBSL Awareness Day is September 20th

Currently LBSL patients and their families face many challenges. Beyond the initial diagnosis and finding information about the disease, there are also physical and emotional impacts of the disease itself on every member of the family. Families often spend an enormous amount of time finding the right doctors and services, as well as explaining their child’s condition to teachers, caregivers or medical providers who have never heard the work “leukodystrophy” before. These challenges are all the more critical in emergency situations.

Cure LBSL is working to make life easier for patients and their families, as well as investing in science that leads to treatments and cures.

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Cure LBSL 2024 Awareness Month Campaign 6

Your contribution today will help Cure LBSL support families with tools to stay up to date on medical treatment options, advocate for better medical care and share their experiences within the community.

Your donation to Cure LBSL is fully tax-deductible and not only brings help toward a cure for this disease but also provides overall support to this worldwide community.

Cure LBSL is giving them knowledge, tools, and hope. By connecting families, we ensure no one feels alone in this journey and we help level the playing field for patients all over the world who have different access to care and resources. Thank you for your support!